GillyBee wrote: ↑Thu Jan 04, 2024 8:20 am
When my Dad knew he was terminal he put together a large file for my Mum which covered every bit of household admin he could think of. Not just the insurance & will information but everything for all household bills, car & general household maintenance.
Not quite in Jansman's training video class but very useful none the less.
I have a different question for those facing life with a family member (or self) with a serious life limiting disease whether terminal or not. How do you keep yourself together mentally when there is no "getting better"? What helps and makes life worth getting out of bed for, especially if you know that the day is going to be painful/undignified/unproductive? How can your family help best?
Its not easy GillyBee you concentrate on a day at a time and there are a hell of a lot of bad days ..but you enjoy the good
Your perspective changes too you look at life differently its easy to get bitter at the person moaning their brand new expensive car has a light flashing but then realise that life goes on for everyone else and its a problem they have which in normal circumstances would bother you
Its true a lot of people avoid you they don't know what to say and the ones who say ..think positive .I want to strangle them even though they mean well dont know what to say or do ..I've told a few we have buried more people with a positive attitude than we can count ..its almost as if you're being told well you were negative so you're going to die
The ..it could be worse .is another ..how

hes dying for goodness sake
The nice gestures are the ones who say this is awful anything we can do to help ? It actually addresses the problem and acknowledges it ...
Other half is just like Jansman ..nothing I can do time is borrowed now so get on with it
As we are living in the shed and one bedroom now you'd think that we'd be on our knees
We laughed like hell in the shed last night..as hes still here and we still have a shed

You kind of get a strange sense of humour ..quite dark really ..but funny to those... in the club ...
If you know someone terminal just keep the normality its the best thing ever ..sympathy and tears wont change it but the hello how are we today does ...
Strange thing death..happens to us all but a lot really don't want to talk about it